燃點會員聚會──從病主法漫談生命美學
這次聚會由燃點「生命自主-終點讚」專案計畫負責人蕭子昂(Stan)發起，藉由家庭聚會的形式，邀請燃點會員們在輕鬆的氣氛下，一起聊聊今年(2019)一月六號正式上路的「病人自主權利法」。 過去三年多來，燃點「生命自主-終點讚」專案一直協助「北市聯合醫院」和「病主中心」進行「病人自主權利法」觀念的推廣，並有數位會員親自試做了「預立醫療照護諮商(ACP)」。期間也協力主辦幾場記者會，希望社會大眾能夠認識並接受「病人自主權利法」，讓每個有完全行為能力的人都能帶著親人去跟醫療團隊做預立醫療照護諮商(Advance Care Planning，ACP)，再簽署預立醫療決定(Advance Decision，AD)，諮商過程可以藉此了解彼此對生死的想法，並與家人敞開心胸充分討論善終的自主意願。當無常來臨，病人和家屬都能減少痛苦、避免遺憾。更能因此減少過度醫療的使用，促進醫病關係的和諧。 病主法案正式上路以來，開始由醫療體系運作(初期全台有77家醫療機構可以做諮商)，燃點「生命自主-終點讚」專案雖然也自製網站，持續推廣相關的資訊，但總覺得還可以再加把勁，多做些努
彭大維講座──生命自主暖說書
生與死，是一張紙的兩面。 人生即是走向死亡，也僅有自然死、意外死、自殺、他殺四種離世方式。 「生死病變老」，說明了死是過程，腦幹死的當下，其他細胞就不可逆，開始慢慢死亡。 彭大維身為國家的禮儀師，提點13個生命自主問題 Q1:我有權利對病的「知情、選擇、決定」？ Q2:遇故時，我想「活」到何時？ Q3:我能自己選擇與決定「生命與生活品質的」（吃喝、排泄、睡眠、溝通）？ Q4:我了解「安寧緩和條例vs 病人自主權利法」？ Q5:我了解三管（食管、氣管、尿管）於人體實際的實施方式與病程的可能變化？ Q6:我了解「維生醫療、心肺復甦術、人工餵養」於人體實際的實施方式與病程的可能變化？ Q7:我了解「二等親（含血親、姻親）」於病人自主權利法的效力？ Q8: Q9:我有意願「器官捐贈」或「遺體捐贈」？（如有顧慮，可先麻醉。註：自殺不能遺體捐贈。） Q10:我了解「照護/臨終處所與環境，維持生命徵象」對自己與家人的意義？ Q11:我的宗教信仰取向？ Q12:我了解喪禮儀式、葬法（肉體死亡、告白式與葬禮）？（註：環保葬：火化後，研磨的自然葬法。） Q13:我的
病人自主權利法上路記者會──市長官邸
病人自主權利法6日上路，病人自主研究中心、燃點公民平台下午在台北共同舉辦記者會。亞洲第一部保障病人自主權利專法「病人自主權利法」正式上路，全台已有77家醫院提供預立醫療照護諮商，年滿20歲或未成年但已婚者可簽預立醫療決定，規劃人生最後一哩路。 「預立醫療照護諮商」(ACP)重點 參與人員 民眾：本人、二親等內之親屬至少一人參與、醫療委任代理人 醫院：一名醫師、一名兩年以上經驗的護理師、一名兩年以上經驗的社工師、臨床心裡師 收費：由各縣市衛生局擬定上限，台北市上限為3500元 「病人自主權利法」五大適用狀況 1.末期病人 2.處於不可逆轉之昏迷狀況 3.永久植物人狀態 4.極重度失智 5.其他經中央主管機關公告之病人疾病狀況或痛苦難以忍受、疾病無法治癒，且依當時醫療水準無其他合適解決方法之情況。 資料來源／衛福部
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